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الغرض من هذه الدراسة هو لقياس تأثير الأطفال ذوي الاحتياجات الخاصة على نوعية حياة أسرهم من خلال مراجعة أدبية للدراسات المتعلقة بهذا الموضوع. بالإضافة إلى معالجة العوامل المؤثرة بشكل كبير على نوعية حياة أسر الأطفال ذوي الاحتياجات الخاصة. كما أنه تتضمن هذه الدراسة مجموعة من الأطفال والمراهقون وكذلك البالغون من ذوي الاحتياجات الخاصة والذين يعانون من مجموعة متنوعة من حالات الإعاقة المختلفة. العديد من الدراسات أشارت إلى أن درجات الرضا والرخاء والصحة هي العوامل الرئيسية التي تؤثر على نوعية حياة الأسرة. بالإضافة إلى ذلك، أظهرت الأبحاث أن هناك عوامل أخرى يمكن أن تؤثر على نوعية حياة الأسر، مثل العامل الاجتماعي، والعامل البدني، والعامل العاطفي، والصحة العقلية، والدعم، والنفقات المالية، والعلاقات الأسرية، بالإضافة الى العامل الأسري. كما كشف هذا البحث أن الأطفال ذوي الاحتياجات الخاصة يمكن أن يكون لهم تأثير على نوعية حياة أسرهم أو على الوضع المالي للعائلة، وكانت درجات الرضا والرخاء وكذلك الصحة هي العوامل الرئيسية التي تؤثر على جودة حياة الأسرة.
The purpose of this study is to review research literature related to testing the impact that children with disabilities have on their families’ quality of life, as well as addressing the factors that have the greatest effect on quality of life in families of children with disabilities. The research participants included children, adolescents, and adults with disabilities with a variety of disability conditions. Several studies indicated that satisfaction scores, well-being, and health were the main factors that affect families’ quality of life. In addition, research demonstrated that there were other factors that can affect families’ quality of life, including social functioning, physical functioning, emotional functioning, mental health, support, out of-pocket expenses, family relationships, and family functioning. This research revealed that children with disabilities can have an impact on their families’ quality of life or on the financial status of the family, and satisfaction scores, well-being, and health were the main factors that affect FQoL. All children need love and encouragement, especially those with learning disabilities. Moreover, positive reinforcement can help to ensure that these children emerge with a strong sense of self-worth, confidence, and the determination to continue even when circumstances are tough (Kemp, Smith, & Segal, 2016). The most common source that can help children with disabilities to find love, encouragement, and support is the family, since parents and siblings are the most interested in providing the appropriate services to their family members with disabilities. This could sometimes affect parents, specifically on the levels of Family Quality of Life (FQOL) and finances. Many Saudi students with disabilities study in Jordan, because there are not enough care centers for students with disabilities in Saudi Arabia. Therefore, there is a financial load on such families of children with disabilities. Thus, this study will investigate whether children with disabilities can have an impact on families, specifically in the areas of FQOL and finances. This study will look not only at children with disability needs, but also at every member in the family. The family of a child with a disability might face many challenges in supporting its child. Therefore, the aim of this study is to investigate the impact of children with disabilities on parents. More specifically, it will investigate the impact of children with disabilities on the financial states of parents and the family’s quality of life. The following question will be investigated in this paper: Is there an impact of children’s disabilities on the financial status of the family or on the family’s quality of life? There are several different measurements that will be utilized in this study. Some of these measurements include the following: out-of pocket expenses other than childcare, disability-related expenditures for substitute child care; and the Beach Center FQOL Scale, which measures parental perceptions of the importance of different aspects of FQOL and satisfaction with quality of life. Finally, there are measurements to evaluate parents’ views about the services that were provided for them and for their children with special needs. In summary, this study will investigate whether there is an impact of children with disabilities on the family’s quality of life or on the financial status of the family.
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