المستخلص: |
A congenital anomaly is an abnormality of structure, function, or body metabolism that is present at birth and results in physical or mental disability. The incidence of congenital heart disease in children with Down syndrome is up to 75%. The types of heart defects in children with Down syndrome can be broken down into three broad categories: 1-Atrioventricular septal defects. 2-Ventricular septal defect, atrial defect or patent ducts arteriosus. 3- Other complex heart disease. Congenital malformations of the heart are the most common of all birth defects congenital heart defect occurs when the heart or blood vessels near the heart don’t develop normally before birth. Heart defects begin in the early part of pregnancy Aims of the study are to: 1- Apply Cincinnati Children’s Down syndrome program care for Dawn syndrome at coronary care unit after surgical repairs and outpatient clinic of cardiology at The National Institute for Heart the patient and his or her parents. 2- Follow-up of the patient’s condition at the Coronary Care Unit and Coronary outpatient clinic, after one month for the prevention of complications. 3-Evaluation of the individual respondents (perception) of the family. 4-Assess the levels of functional independence in children with congenital heart defects before and after surgical repairs. The sampling size: 93child with Dawn syndrome and congenital anomalies of the heart their ages ranged between (2-12) years, for repair of heart defects. The following tools were applied immediately after admission, and then after one month. 1- The WeeFIM (Functional Independence Measure). 2- Cincinnati Children’s Down syndrome program-(Immediate Post-operative Care and Home Care after Heart Surgery). 3- Self-Care Program for Dawn syndrome Children. The study revealed that there were an improvements with highly significant difference as regard physical, psychological condition of the patients and cooperation, an excellent interest from the parents for the participation in the program before and after surgeries. Congenital Heart Defects with Down syndrome Children are in need for Cardiology nurse specialist, Critical Care nurse specialist, physical therapist, anesthetist and psychologist for applying Cincinnati Children’s Down syndrome program.
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